First of all, I just wanted to say that Sierra's very first cousin was born today. His name is Remmington James Shalom Klassy. Sierra hasn't met him quite yet but she will soon.
Sierra was very happy to have her CA grandparents here for a visit. We were all sad to see them go.
Sierra got to meet her great grandmother Fedelem for the first time while we were in FL.
This week Sierra's other great grandmother is visiting.
Doctors and Tests
Sierra has quite a few appointments coming up this month and next. Today we went to see her pediatrician for a check-up. Tomorrow we go for a 4 hour video EEG. If the results are good, her local neurologist will consider decreasing the amount of Keppra (anti-seizure medication) that she is taking.
Dr. Hammesfahr wants us to go see an endocrinologist and to have Sierra's hormone levels checked. Brain injured children usually have messed up hormone levels. He says that by correcting those, it will help the brain. Dr. H also wants her to get an MRI, a STECT and another test. We will be doing those next month.
We have been seeing lots of little improvements over the past couple of weeks. Sierra is doing so much better with weight bearing on her legs! Now she can stand for several minutes at a time. We don't need to hold onto her for balance but she does have to have her hands on something to help her keep her balance. Her balance is improving so much! I put her in a sitting position the other day and she sat there for several minutes.
She has also become much more "talkative" and louder. She still does not make any real tonal type sounds. It is mainly gutteral.
Another encouraging improvement is that she has been so much more awake and alert. Before, she would keep her eyes closed almost all the time even when she was awake. Now, she keeps them open quite a bit throughout the day. She is doing so well. I am so proud of her and so grateful for these improvments that God has given her! We are continuing to pray for more improvements.
I really should take some video clips of her and put them on here. I'll try to get to that soon.
We are very pleased with Dr. H and how optimistic he is. The only very discouraging thing is that we will have to fly out to FL once every three months to have an appointment (This is not his requirement...the medical board of FL requires it). There is a very slight chance that we may be able to get insurance to cover it. We would really appreciate your prayers that this would happen. We will just have to trust that God will provide the funds to allow this.
Monday, July 13, 2009
Posted by Rosetta at 8:52 PM
Friday, July 10, 2009
I do have some updates to write about Sierra, which I will try to get to later today or tomorrow, but this was on my mind so I wanted to write it down.
Today Sierra and I went to the grocery store. While we were there, we saw a young man in an electric wheel chair. I'm guessing that he had cerebral palsy in addition to other disabilities. He obviously could not walk, his hands were spastic and not much use to him, he got around by using a stick attached to his forehead to move the wheelchair. I have to admit, I stared at him. But, it was not out of pity or to gawk.
I stared out of admiration. Here was a young man who was severely disabled but he did not let his disabilities disable him. He was at the store all by himself. The workers seemed to know him. One employee was chatting away with him and then another came to push a cart for him. This young man could not talk, but he had a computer screen in front of him that was a communication device. He did everything with the stick attached to his forehead. He communicated and maneuvered around the store. You could tell that it wasn't always easy to get around with the stick and get it in the right place, but that did not stop him. I didn't see a man to be pitied but a man to be admired and respected, not someone who was disabled, but rather someone who was enabled with determination and strength.
It is my hope and prayer that Sierra will be like this young man, in that she will have the determination and strength to continue going even when life is rough.
Posted by Rosetta at 12:37 PM