We had a neurologist appointment today. She switched neurologists since her other one moved. The appointment went okay. He referred her to two other doctors to help keep track of her spasticity and scoliosis (looks like she has scoliosis which really didn't surprise us.) *Sigh* I hate going to doctor's appointments because they are so depressing. :-(
While we were at S&W, I decided to take Sierra to NICU to say "Hi" to some of the nurses there. It was SO difficult to go there. NICU is on the opposite side of the hospital, which means it was a long walk. On my walk over, I almost turned around several times. The sights, sounds, and smells were emotionally overwhelming. They brought back floods of memories; memories that I wish did not exist.
We did get to see a few of the NICU nurses. It was good to see them. The NICU nurses are wonderful!
I called up ECI (Early Childhood Intervention) today to see about getting Sierra on it. They are going to contact me in a few days. Then they will go over which types of therapy she will receive.
Wednesday, July 30, 2008
Doctors, doctors, doctors
Posted by Rosetta at 11:56 AM 2 comments
Tuesday, July 29, 2008
News will air later this week
The interview with the news station went very well this evening. Stephanie Franks did a great job in interviewing us and I think this will give Sierra the coverage she needs. We're not sure when it will actually air, probably Friday but we'll have to see.
Please keep praying. We're going to let News 10 break the story and then start trying to get newspapers and other stations involved next week.
Posted by Jason Fedelem at 8:35 PM 0 comments
Monday, July 28, 2008
News Interview!
KWTX called us this morning. They are going to come over tomorrow and do an interview! They want to do a story on Sierra.
Please be praying that it would go well and that God would direct us what to say!
Posted by Rosetta at 10:11 AM 0 comments
Sunday, July 27, 2008
Numbers
Wow. God has really blessed us. We've been actively fundraising for about a month now and God has provided $4500 so far. We have also had over 850 website hits and 103 members on the facebook group. A note about the website hits: to count as a hit, it cannot be our ip address, and that ip address must not have visited for at least an hour. So these are actual, legitimate seperate hits.
Our church is supporting us with prayers and money which is a great relief and we appreciate their support.
We were a little concerned about Sierra today because when we got home from church she started having myoclonic movements, but they went away. I think it might have been the half dose of children's Motrin we gave her lastnight to help with her teething pain.
Please pray that we'd get donations for the auction on 8/23. We haven't had any donations yet. We need to pound more pavement and get the word out, but also we need to figure out which person at each business has the power to do this. We also are needing contributions from individuals of items in good condition, so let me know if you want to donate something to be auctioned off
Its so nice to have my girls back from San Anton.
Posted by Jason Fedelem at 11:16 PM 1 comments
Sunday, July 13, 2008
Hyperbarics Again :-)
Just wanted to write a quick update. Sierra, my mom, my sister, and I will be going to San Antonio tomorrow to start two weeks worth of hyperbaric treatments. Please pray that God uses them to do a lot of good.
The 4th of July fundraiser went well. Some of the upcoming fundraisers include...
*A BBQ and auction sponsored by the Elks Lodge #138, Wind & Fire, and Kay's Motorcycle Mania.
*A pet photo contest and a baby photo contest
*A Christian concert
*A garage sale
We are still working on details. More information to come.
Posted by Rosetta at 11:03 PM 2 comments
Thursday, July 3, 2008
Fundraiser
Tomorrow we will be having our first fundraiser for Sierra's medical fund for stem cell treatments. We are having an arts and crafts booth at the Fourth of July celebration in Belton. We have been super busy making things! Here two pictures that I took of her today to put on the poster board with info on it for tomorrow.
Posted by Rosetta at 1:14 PM 1 comments